Monday, November 22, 2010
ok sooooooo not such a great day at the immunologist. Scary scary stuff. I have spent the week freaking out and crying. Yes I am a little emotional but oh well. The immuno dr thinks she has an auto immune disease. Crazy thing I got the test results friday but no one to interpret them. There were 2 done that have to do with an auto immune disease and one is off the charts high and the other is slightly elevated. Sooooooooo seems to look like I know where this is going to go. I AM SCARED TO DEATH. SCARED SCARED SCARED. Some of those diseases are horrible. Now I just wait for a DR to call ME!!!!!!!!! Ugh!
Monday, November 8, 2010
I also wanted to say thank you to you that prayed for my little Kinsey. I haven't said all my thank yous and I need to. I think I have had a hard time cause I just don't want them to stop. I guess I am scared its going to happen again. Please forgive my craziness and thank you for praying!
ok soooo lots has happened since my last post. If anyone reads this (I am not sure) Kinsey is pretty much all better. I really hate to utter those words, I guess just afraid something else might happen. She still is being followed by Hematology, Oncology, Immunology, Dermatology and an Allergist!!! lol!!!!! oh and of course her new Pediatrician that we switched to after he took such good care of her in the hospital (even though I think I yelled at him a few times!) We are still having a skin issue that we don't know why and also it seems she is sneezing nonstop but overall who cares about those little things. She goes back to the Immunologist next week to have a discussion on vaccinations. Its a favorite of mine, not. Got to decide what to do about vaccinating her. fun. But it will be interesting to hearr what they have to say. Keelin is doing good too. Poor kid kinda gets lost in the shuffle of Kinsey it seems. Hopefully I will be able to make up for all that. I try. I have been having so much fun with the girls every week going to their tennis lessons. Yes Kinsey takes tennis too. They have so much fun. Amazing to think I thought we wouldnt ever be there.
Sunday, May 16, 2010
well. Here I am again. But sadly all is not well. My sweet baby kinsey is still in the childrens hospital and has now been here for 22 days. THis place will make you crazy. The plan for the moment is:
today we had scans of internal organs
tomorrow bone scan of the foot and heel
tomorrow last day of iv antibiotics
wait 48 hours
if fevers continue then we have bone marrow biopsy thursday or friday
once we get a negative from that then we start steroids and they bring in a rheumatologist.
also if the bone scan shows something in her heel then we probably have to do a heel biopsy as well.
I am asking for everyone to pray for my Kinsey. WE NEED A CLEAR BONE SCAN. FEVERS TO GO AWAY BY WEDNESDAY AND IF THEY DONT THEN WE NEED A NEGATIVE BONE MARROW BIOPSY.
THANK YOU TO EVERYONE!!!!!!!!
Thursday, January 21, 2010
Sunday, January 10, 2010
So I went to the orientation and they basically told us it would be horrible and scary and we might need therapy before its all over. No joke. So yay. I have been studying this weekend since there is not too much going on since its been so icey. Love the fact the mail lady plowed down my mailbox. Seriously I think it's funny. Oh am I am not inspired at the moment.
Sunday, January 3, 2010
So today I need to be doing laundry and cleaning so I can get prepared for the week. Vacation is pretty much over, boo hoo. I have orientation for the new semester this week. Keelin goes back to school on Tuesday. I hate the fact that I have to get up so early to be somewhere by 9am. It takes so long to get to school. I mean my system is in for a shock cuz I have slept until noon for the past week.